Innovation
This study on ILD educational practices is innovative in its comprehensive coverage of a wide range of topics tailored to ILD patients, including disease understanding, symptom management, psychological support, and end-of-life care. It also employs a multidisciplinary approach, involving various healthcare professionals such as nurses, pulmonologists, and physiotherapists, ensuring holistic and patient-centred care. Additionally, the use of diverse delivery methods, from face-to-face communication to web-based resources, enhances accessibility and effectiveness of patient education.

Evaluation System
Single Group Intervention Pre-Post Pilot Study:
PE Tools: Patient information brochures (web-based).
Contents: Basic education about airways, diagnosis, procedures, therapy, nutrition, complications, etc.
Outcomes: Self-efficacy, satisfaction, chILD-QOL (self-report and caregiver report).

Assessment
Educational Topics:
1. Pathophysiology of ILD: Explanation of the disease process.
2. Clinical Tests: Information about tests used for diagnosis and monitoring.
3. Managing Breathlessness/Dyspnoea: Techniques and interventions.
4. Managing Cough: Strategies to control chronic cough.
5. Managing Fatigue: Ways to combat fatigue.
6. Managing Flare-Ups: Recognising and managing exacerbations.
7. Prognosis: Understanding the course of the disease.
8. Managing Anxiety, Panic, and Depression: Psychological support and interventions.
9. Using Supplemental Oxygen: Instructions on when and how to use oxygen therapy.
10. Using Ambulatory and Nocturnal Oxygen: Guidance on portable and night-time oxygen use.
11. Regular Vaccination: Importance of vaccinations in preventing infections.
12. Managing Medications and Side Effects: Information on drug therapy and managing side effects.
13. Good Nutrition: Dietary advice for patients.
14. Managing Co-existing Medical Conditions: Addressing other health issues alongside ILD.
15. Accessing Home Care and Support: Resources for home care for patients and caretakers.
16. Smoking Cessation: Importance of quitting smoking.
17. Symptoms of Gastroesophageal Reflux Disorder: Identifying and managing GERD symptoms.
18. Adherence: Importance of following treatment plans.
19. End-of-life Care and Advanced Directives: Planning and understanding end-of-life care options.
20. Pulmonary Rehabilitation: Value and components of rehabilitation programs.
21. Importance of Exercises: Exercise routines for maintaining physical health.
22. ILD Specific Topics: Other disease-specific education.
23. Autonomy: Promoting patient independence.

References
Brighton LJ, Spain N, Gonzalez-Nieto J, et al. Remote pulmonary rehabilitation for interstitial lung disease: developing the model using experiencebased codesign. BMJ Open Respir Res 2024;11:e002061. doi:10.1136/ bmjresp-2023-002061