The Breath project (Project Number: 2022-1-PL01-KA220-HED-000089283) has been Co-funded by the European Union. Views and opinions expressed are however those of the author or authors only and do not necessarily reflect those of the European Union or the Foundation for the Development of the Education System. Neither the European Union nor the entity providing the grant can be held responsible for them.

Ten tips for patients with ILD associated with rheumatic diseases

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Institution
Spanish Society of Rheumatology (SER)
Institution Typology
Public Institution
Country
Spain
Description
In rheumatic diseases, Diffuse Interstitial Lung Disease (DILD) is mainly associated with connective tissue diseases, although not in all of them equally, and also with rheumatoid arthritis. Its presence is related to greater morbidity and mortality, although its evolution depends on each patient. What experts are clear about is that a multidisciplinary approach is necessary.

On the occasion of the VI SER Course on Diffuse Interstitial Lung Disease (DILD) in rheumatic diseases, which was held in Madrid on October 14 and 15 and which included the collaboration of Boehringer Ingelheim and Bristol Myers Squibb, from the Spanish Society of Rheumatology they have prepared this decalogue of advice for patients with these conditions.

It is aimed at patients with rheumatic diseases who may have respiratory conditions.

This initiative may have a technology barrier for the population that does not have or does not know how to use technological resources.

It offers information on the latest evidence linking rheumatoid arthritis and interstitial lung disease.

It is transferable to the entire population susceptible to interstitial lung disease.

Disease
Interstitial lung disease
Activity level
Low
Activity Typology
Rehabilitation section-based activities
Motivation Tools
Available
Innovation
Among its recommendations is to periodically exercise adapted to each functional situation. Maintaining the best possible physical condition and good muscle tone will help improve the functional capacity and quality of life of patients. It relates physical activity to adequate nutrition and maintenance of body weight.





Evaluation System
There wasn’t evaluation system





Assessment
Accessing information easily and free of charge provides the user with peace of mind and security in aspects related to their illness.





References
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- Fumihiko Namba, Daisuke Kamiyama, Shinya Hara, et al. Progressive fibrosing interstitial lung disease in rheumatoid arthritis: A retrospective study. Respiratory Medicine, 2022


- Fischer, A., & du Bois, R. (2012). "Interstitial Lung Disease in Connective Tissue Disorders." The Lancet, 380(9842), 689-698.


- Assayag, D., et al. (2015). "Rheumatoid Arthritis-associated Interstitial Lung Disease: Radiologic Identification of Usual Interstitial Pneumonia Pattern." Radiology, 275(3), 866-875.


- Vincent Cottin, Athol U. Wells, Marlies S. Wijsenbeek, et al.Effect of nintedanib in patients with progressive pulmonary fibrosis associated with rheumatoid arthritis: Data from the INBUILD trial. Clinical Rheumatology, 2021





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Carolina Acosta Naranjo, Universidad de Las Palmas de Gran Canaria - Spain (ES)
Estos consejos me parecen una manera muy efectiva de informar sobre las últimas evidencias a los pacientes susceptibles de padecer una enfermedad pulmonar intersticial. No obstante animo a trabajar en esa barrera tecnológica para que la información llegue a la población con menos recursos tecnológicos.