Breath project

The effect of telerehabilitation on the quality of life, anxiety and depression of children with cystic fibrosis and their caregivers: a single-blind randomized trial

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Institution
Faculty of Medicine, University of Marmara

Institution Typology
University

Country
Turkey

Description
Intervention design: The study group received an exercise program three times a week via Zoom for 12 weeks. The exercise program applied by each researcher to the patients for whom they are responsible was based on high-intensity interval training and postural strengthening. This was prepared by a specialist physiotherapist and can be found in a supporting information file. People involved: Twenty-eight patient-caregiver dyads, intervention group, n=14 dyads and control group, n=14 dyads Barriers identified: A multicenter approach can give different results, and similar results cannot be guaranteed. The importance of monitoring heart rate during exercise is highlighted. Despite these limitations, telerehabilitation can be used safely and effectively anywhere. Sustainability: A telerehabilitation approach that includes postural and aerobic exercises can help CF patients improve their functional status, depression and anxiety levels and can positively influence body image. Transferability: The approach can be adapted to other respiratory diseases or conditions and in other countries or demographic groups, but there needs to be equipment to enable telerehabilitation.

Disease
Cystic Fibrosis

Activity level
Medium

Activity Typology
Home-based activities

Motivation Tools
Not available

Innovation
Postural and aerobic exercises are essential in the rehabilitation of cystic fibrosis (CF). The aim of this study is to examine the effect of telerehabilitation on the quality of life, depression and anxiety levels of children with CF and on the mood and anxiety levels of their caregivers.

Evaluation System
The Revised Cystic Fibrosis Questionnaire (CFQ-R) and the Revised Child Anxiety and Depression Scale (RCADS) were administered to patients, and the State-Trait Anxiety Scale (STAI) and the Beck Depression Inventory (BDI) were administered to caregivers at the beginning and end of the program. Patients' FEV1 levels and 6-minute walk tests were also measured. The average initial RCADS-Major Depressive Disorder score of patients in the exercise group was 6.21 ± 3.11, and this value decreased to 3.92 ± 3.79 at the end of the study and was significantly better (p < 0.02). A similar significant change was observed when the RCADS score - generalized anxiety disorder decreased from the initial mean level of 6.28 ± 2.81 to 3.42 ± 2.65 (p < 0.01). There were significant changes in body image improvement in the telerehabilitation group. No similar significant changes were observed in the control group. The anxiety and depression levels of the caregivers did not change significantly.

Assessment
A short-term telerehabilitation program improved patients' levels of anxiety and depression, body image and functional status. However, the anxiety and depression levels of the caregivers did not change significantly.

References
Kenis‐Coskun, Ö., Aksoy, A. N., Kumaş, E. N., Yılmaz, A., Güven, E., Ayaz, H. H., ... & Karadağ‐Saygı, E. (2022). The effect of telerehabilitation on quality of life, anxiety, and depression in children with cystic fibrosis and caregivers: A single‐blind randomized trial. Pediatric Pulmonology, 57(5), 1262-1271. doi.org/10.1002/ppul.25860" target="_blank">doi.org/10.1002/ppul.25860" target="_blank">doi.org/10.1002/ppul.25860" target="_blank">doi.org/10.1002/ppul.25860

William Rodriguez Mc Feat, ULPGC - Spain (ES)
Un tema a abordar importante en la actualidad, el cual cogió peso tras la COVID—19. La generación de nuevas ventanas terapéuticas tal y como es la tele rehabilitación demuestra la progresión que se está realizando en las herramientas de abordaje en las patologías respiratorias.

Definitivamente un estudio muy interesante, mi enhorabuena por la inclusión de este en la página.

Bruno Ferreira, ESS - IPS - Portugal (PT)
Very interesting study. Future research could explore tailored interventions for caregivers to enhance overall family well-being. Additionally, incorporating patient engagement or motivation tools could further optimize adherence and outcomes.

Carla Raposo, ULSSM - Portugal (PT)
A highly important study on accessibility to healthcare, monitoring and training in carrying out extremely beneficial rehabilitation exercises in chronic respiratory diseases. Study compatible and possible to be implemented in different contexts.

Julia Palus, Uniwersytet Opolski - Poland (PL)
Artykul jest bardzo pouczajacy. Pokazuje inne oblicze elektroniki ktorego prawdopodobnie wielu nie znalo. Swietny pomysl!

weronikapatrzek Patrzek, Uniwersytet Opolski - Peru (PE)
Bardzo interesujacy i przydatny artykul

Ania123456 Soforek , Uniwersytet Opolski - Poland (PL)
Super inicjatywa