The Breath project (Project Number: 2022-1-PL01-KA220-HED-000089283) has been Co-funded by the European Union. Views and opinions expressed are however those of the author or authors only and do not necessarily reflect those of the European Union or the Foundation for the Development of the Education System. Neither the European Union nor the entity providing the grant can be held responsible for them.

Patient Experience in Home Respiratory Therapies: Where We Are and Where to Go

Cátia Caneiras, Cristina Jácome,Sagrario Mayoralas-Alises, José Ramon Calvo, João Almeida Fonseca, Joan Escarrabill, João Carlos Winck

Thematic Area
Management, Rehabilitation paths, Patients’ perspective
Summary
The increasing number of patients receiving home respiratory therapy (HRT) is imposing a major impact on routine clinical care and healthcare system sustainability. The current challenge is to continue to guarantee access to HRT while maintaining the quality of care. The patient experience is a cornerstone of high-quality healthcare and an emergent area of clinical research. This review approaches the assessment of the patient experience in the context of HRT while highlighting the European contribution to this body of knowledge. This review demonstrates that research in this area is still limited, with no example of a prescription model that incorporates the patient experience as an outcome and no specific patient-reported experience measures (PREMs) available. This work also shows that Europe is leading the research on HRT provision. The development of a specific PREM and the integration of PREMs into the assessment of prescription models should be clinical research priorities in the next several years.
Relevance
This article contributes to the evaluation of the patient's experience in rehabilitation care at home. Patient experience is the cornerstone of high-quality healthcare and an emerging area of clinical research.This element is extremely important for person-centered care.
Keywords
Long-term oxygen therapy; home mechanical ventilation; patient-reported experience measures; quality of care; healthcare; sustainability