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Patient experience with home respiratory therapies in Portugal : it is time to move forward

Catia Caneiras, Cristina Jácome, Sagrario Mayoralas-Alises, José Ramon-Calvo, João Almeida Fonseca, Salvador Diaz Lobato, Joan Escarrabill, João Carlos Winck

Thematic Area
Management, Rehabilitation paths, Patients’ perspective
Summary
The number of patients needing home respiratory therapies (HRT), such as long-term oxygen therapy and/or home mechanical ventilation (HMV) in Portugal is increasing. These therapies help individuals to improve function and live with greater quality of life; and assist them to remain at home, avoiding hospital emergencies, unscheduled consultations and hospitalizations.4 Data from a recently published work confirms this increasing trend: in 2018, almost 80% of the HMV specialized centres were treating >30 new patients per year, currently treating >200 patients in total.5 Moreover, the director of the National Program for Respiratory Diseases, based on the prescription database, showed that in 2017 the prevalence rose to a record of 80/100.000, very close to France, the country with the highest figures in Europe (C Bárbara 2019, personal communication, May 30th, Jornadas de Pneumologia CH Entre Douro e Vouga). An innovative national, patient-centred care home respiratory model was implemented in Portugal in 20146 and the major challenges are to create key performance indicators in order to maintain the access to HRT, national healthcare service sustainability and quality of care.
Relevance
This editorial addresses the patient experience. Considers that this is increasingly recognized as one of the three pillars of quality healthcare along with clinical effectiveness and safety and includes several aspects of healthcare delivery that patients place a high value on when seeking and receiving care, such as getting timely appointments, easy access to information and good communication with health care providers.
Keywords
home respiratory therapies; Patient experience